Maymoona Chouglay, the founder of Infinite Abilities, is a social worker both in her professional capacity and as a volunteer. She is deeply involved in trying to alleviate the societal challenges of the disabled community. Her journey to finding her own path has driven her to facilitate the lives of the visually impaired. Her story shows us that it is important to always find the silver lining in the cloud, irrespective of the challenges, and that we all have the power to turn our pain into purpose.
This is Maymoona’s story …
I am sitting in the classroom and all I see is a colourful blurriness, but I cannot see the distinct features on the faces of my fellow classmates nor the letters on the dark green board a few feet away from me. It feels like a cloud hovering in front of me, through which I need to see, but I find comfort in the presence of my mother, my pillar, and my strength. She is seated alongside me, to make the lines in the book darker, to read to me from the board and to help me with learning to write, between the lines, and on the days that she is not present in class with me, my teacher tries her best to include me in all the activities.
When I reflect on my first two years of mainstream schooling, in Johannesburg, South Africa, I can remember clearly how challenging it was trying to immerse myself in a classroom designed for and filled with learners without disabilities. The struggle to immerse myself in my new surroundings was not due to a lack of care but due to a lack of special-needs resources and infrastructure, which is predominant in most mainstream schools within South Africa.
In 1987, I was born six months prematurely, in Kimberley, South Africa, weighing 680 grams. While being incubated, I was given too much oxygen which resulted in my retinas becoming detached. Despite having undergone several operations, and receiving the best ophthalmologic care, nothing could be done to reverse the damage, thereby causing me to become visually impaired. With the need to search for better working opportunities, my parents returned to my father’s hometown, in Johannesburg, a city situated five hours away from Kimberley.
It was while I was in Johannesburg, that I entered mainstream schooling. However, the respective school was not equipped to accommodate my condition and we were referred to Prinshof School, for the visually impaired, in Pretoria, South Africa. After we went for our first appointment at Prinshof, to ascertain if it would work for me, my mother assured me that I would manage at the special school, and that she would continue to assist me.
When I was eight years old, we relocated from Johannesburg to Pretoria to enable me to start my new journey. I went from having to sit in front of the board in my former mainstream school, to be able to read the letters, to being able to immerse myself in an accommodating world with learners who endured similar challenges as me. Prinshof was truly the game changer in my development as an individual. It set me on a path of healing and growth by creating a space of belonging. Before Prinshof, I did not have a strong sense of self but through Prinshof, I became very confident and found my sense of self.
I became active and partook in many school activities including athletics, swimming, piano lessons, and the school choir. I completed Grades 1, 2 and 3 within 6 months of commencement. The rate of my development was outstanding to the extent that Prinshof wanted to promote me to Grade 4 within my first year. However, my mother refused the suggestion with the reason of wanting me to focus on learning braille and to become more well-rounded by acquiring skills in other areas, not just academics.
For the next three years, I was thriving at Prinshof but then, in Grade 6, at age 11, my World got shaken to the core by the sudden loss of my mother to lupus. It really stunned me that my biggest supporter was no longer there to cheer me on and to guide me on my path of becoming … There are days that I still miss my mother. I miss her tender touch, her comforting hugs, and her unconditional love but as a child, it was harder to navigate the World, without her, because she was my voice, and as a child, I was still finding my voice. In the midst of the darkness, my father and I held on to each other, and even if I never got over the loss of my mother, I appreciate and have the greatest respect for my father, for always being there for me and for creating a sense of normalcy for me, when she left this World.
One year after my mother’s passing, my father remarried, and I was blessed with a second mother. She became the mother I needed when my own mother was no longer, and our little family of three was later expanded with the arrival of my twin brothers. This sense of family has been my comfort and through the coming years, I continued to thrive at Prinshof until I completed my secondary education. When I started studying at university, interestingly, it felt like I was regressing into the real world where the mundaneness of university life was in fact, a blind person’s nightmare, all because of a lack of reasonable accommodation.
It was tough adjusting but fortunately, my mother accompanied me to campus as I embarked on my BA Degree in Social Work at the University of Pretoria. She was there for the first six months, assisting me with navigating classes and making notes, until we employed the services of an assistant that walked me to classes, typed my notes and books, where needed, and executed any other tasks that were required. Although I used a white cane, it was very difficult navigating campus with it because university buildings are not always streamlined and flat-surfaced to facilitate walking unaided or even, with a cane.
During my second year of university, I was further diagnosed with glaucoma, which caused me to lose my eyesight completely. I nearly threw in the towel and quit university because my condition got progressively worse, and the daily challenges were just mounting. It was tough but as a believer, I was reminded of one of the most enlightening verses in The Qur’an, “Allah does not burden any soul greater than it can bear” (Chapter 2, Verse 286) and I soldiered on. Six years after I started university, not only did I complete my BA Degree in Social Work, in 2012, but I also graduated, in 2013, with a BA Honours in Social Work.
I have worked and continue to work both within the governmental and non-governmental sectors, from Gauteng North Services to the Department of Social Development and am currently busy with my Masters in Disability Studies. Being a person that is living with a disability, has augmented, and aligned me to assist people with disabilities, in addition to my other social work responsibilities. I am involved in extensive voluntary community work, with other organizations, including the supervision of a home for blind children, from ensuring their well-being to their accessibility to an education, and an empowerment center under the auspices of a non-governmental organization, Garden Social Services. I was previously involved in consulting work with the braille packaging of skincare product ranges with L’Occitane, for a two-year period (2018-2019), and currently participate in public speaking engagements, disability awareness training and campaigns and have also established my own organization.
In 2019, Infinite Abilities was established as a consulting firm to serve persons with disabilities, and their families, with therapeutic to general support and empowerment services. The organization offers educational and disability awareness training to businesses and organizations and supervises social workers and social auxiliary workers in their respective roles in accordance with the Social Work Supervision Policy Framework but with a special focus on dealing with persons with disabilities. The vision of Infinite Abilities is that through its services, every professional will become aware of and be educated and equipped with the skills, tools, and guidelines to assist persons with disabilities that they may encounter in the workplace or in their everyday lives.
For the past four years, since its inception, Infinite Abilities has been a one-woman show. Hence, with the aim of expanding and bringing members on to the executive board, the organization hopes to reach more individuals, living with disabilities, by providing resources to aid in their medical care and counselling services, their educational aspirations and to enable the disabled community to live empowered lives. Furthermore, Infinite Abilities aspire to assist social workers to establish their own private practices with the aim of accommodating more persons with disabilities that are unable to reach the government’s social work services due to geographical locations or being under-capacitated.
There are numerous daily challenges that I encounter in my interactions with people that are not attuned to my visual impairment, from a personal assistant that may not read the instructions clearly, to me, to a driver that does not drop me off at a precise location and it is frustrating, and it can be depressing but I refuse to live in those moments of darkness. I am a firm believer that this condition has been bestowed upon me, to be of service to humanity, to aid me in understanding the nuances of living with a visual impairment and to use my voice to be a voice for other visually impaired children and adults. No matter where my journey may lead to next, I will continue to strive and empower myself, to the best of my ability, to use those skills to help the disabled community but my deepest desire, in all of this, is that society learn to pass the baton, to persons living with disabilities too. We are more than just being disabled.
If you are interested in learning more about Maymoona or would like to get in contact with her, please reach out via her Facebook page, Infinite Abilities, or email her at info@infiniteabilities.co.za.
JOURNEYS OF HER 