Oluwakemi Odusanya

Oluwakemi Odusanya, founder of Eagle’s Voice International for Disability Rights

Oluwakemi Odusanya, the founder of Eagle’s Voice International for Disability Rights is driven by her personal experience of living with a visual impairment. She is a disability-rights advocate, a freelance journalist, and holds a Master’s degree in Public and International Affairs. with aspirations to empower many blind women in Nigeria. Her story shows us that a disability can also be acquired and is not simply limited to birth, and that as human beings, we should always be cognizant of the fact that a disability can strike, anyone, at any given moment.

This is Oluwakemi’s story …

“This cannot happen to my child! We don’t have this disease in our lineage!”

My father’s words of anger, aggression and fear, was inflicted on my mother while she hid her pain beneath her beautiful smile, I was confused and wept myself to sleep every night. Little did I know that this was only the start of a new beginning.

Everything changed, in our lives, when at the age of 9 years, I tried to light a matchstick, to prepare dinner for our family. While I lit the matchstick, its particles entered my left eye causing me to feel dizzy and blurring my vision. My parents, thinking it was stress, tried to treat my situation with home remedies.

However, my vision only deteriorated with time, and four years later, my parents received the shocking diagnosis, that I have a retinal detachment in my right eye. My parents were initially shocked and in complete denial but being the eldest of four children and especially my father’s favourite, it was very painful for him to accept my condition but despite the emotional roller-coaster, my parents sought out professional treatment.

After several surgeries and a financial drain, I subsequently made the decision to discontinue with surgeries as there was no hope of recovery and I was tired of treating my eyes with surgical knives. I watched my life unravel, from what I knew it before and what it became after the incident. My self-esteem was at a very low point, my education came to a halt, my classmates deserted me and even my closest family members, my cousins, distanced themselves from me. It was very isolating while everyone pretended that everything would be alright.

At the failure of modern medicine, my parents took me to several herbal doctors, who made me bathe in the river, eat in the jungle, and drink concoctions, all in a bid to restore my sight but to no avail. A friend of my mother then advised her to enrol me in the Pacelli School For The Blind & Partially Sighted Children. It was at this respected school and rehabilitation centre, that I received the necessary skills training and education that facilitated my integration back into mainstream society. While my mother was supportive throughout my transition, it deeply bothered my father.

Wracked with guilt, he could not accept my blindness and would often have intense fights with my mother about it. He wanted my mother around me all the time, to shelter me, and would be mad if, for instance, she arrived home late from the market, as he told her she need to babysit me at all times. All these altercations lowered my confidence, and most times, I wanted to escape from the chaos at home but my mother forged ahead and ensured that I become independent.

After completion of secondary school, I enrolled for a degree in Mass Communication at the University of Lagos. During my studies, I realized that there were only a few women, with disabilities, in university and the reasons were because some could not use the computer independently while others were battling with accepting their disabilities. To prevent myself from becoming a frustrated and lonesome blind woman, I decided to participate in every available activity on campus.

During my second year, I developed a sensitization programme for the university’s campus radio, which aimed to change the mindset and perceptions on disabilities. As a result, my self-confidence increased and communication skills improved. However, the opportunity to join the National Youth Service Corps (NYSC) in Nigeria, after graduation, was a liberating experience.

The National Youth Service Corps (NYSC) is a one-year mandatory service for Nigerian graduates, not older than 30 years, where they are expected to work in a social organization, in line with their studies, but outside of their respective states. Being born and raised in Lagos State, I was posted to Zamfara State, in the Northern parts of Nigeria, a whole 24-hour bus ride from home. Now imagine a blind girl travelling solo, no parents or siblings to protect her or friends to guide her.

Being in the comforts of my home and familiar surroundings, my whole life, this opportunity to explore came at such a great time where I was learning more about my own capabilities. The solo experience strengthened my mobility skills, gave me the confidence to travel alone, and helped me to improve my communication skills and self-resilience. I realized every girl and woman, with a disability, should be given the opportunity, to travel, to discover herself. After three weeks on campground in Zamfara State, I was redeployed to Lagos State for better accessibility and to begin my primary place of assignment at a radio station.

My path from a sighted young girl to a woman, with a visual impairment, which was shaped and inspired by my mother’s unrelenting support and unconditional love, motivated me to want to create a space of change for young women, such as myself, who were not given the opportunities I was given. In 2022, Eagle’s Voice International for Disability Rights was established to equip blind women in Nigeria with basic 21st century skills, to enable them to be self-resilient and to attain leadership roles in media, politics and corporate society. Our vision is to see blind women as active drivers in the Nigerian economy and a Nigerian society that both respects and values visually-impaired women as contributing citizens.

Eagle’s Voice International for Disability Rights, since it inception, participated in many projects and activities. In 2023, we partnered with the Nigeria Association of the Blind, to provide 2-month training to empower ten blind and partially sighted women, in the Lagos metropolis, with computer orientation, community awareness and mobility skills. We also collaborated with non-governmental organizations (NGOs), in Lagos, to organize workshops and seminars, that equipped blind women with essential skills in communication, critical thinking and technical proficiency.

Currently, we are upscaling the leadership skills training project with support of the pollination project, at the University of Lagos, by training twenty blind and partially sighted women, including men, with skills in computer proficiency, communication and emotional intelligence, and orientation and mobility. The training commenced in January 2024 and will conclude in April 2024. The projects and activities have expanded our knowledge and made us aware of a much greater need and capacity to train more women with visual impairments and to demystify the negative perception of people with disabilities.

Although impact can never be measured, many participants have been greatly impacted by our projects and activities, inspiring them in becoming more confident and daring in their aspirations and maximization of their potential. Sensing and watching them bloom is always such a pleasure for everyone involved and we want more of this impact to the extent that we see more people with disabilities in the ministerial sphere of society, where no blind and visually impaired person has ever ventured within Nigerian society. More people with disabilities at the top-tier of society consequently means more impact and positive change for their fellow beings at grassroot level. With this in mind, every action and thought of Eagle’s Voice International for Disability Right is governed by this purpose.

When reflecting on my growth and development and thinking on the different, yet well-meaning, parenting styles of both my parents, I am immensely grateful that even if my father did not initially agree with my mother’s decisions, that she stood her ground in exposing me to the outside world. Any parent want to protect their children but to shelter a child with disabilities will not benefit any such child in the long run. It is best to emphasize on their developments, yet at the same time, to be respectful of their limitations, in helping them navigate their surroundings. Being assertive in their growth is not the same as tough love, because tough love without respect is damaging to their growth.

Thus, the same analogy can be used in dealing with and including people with disabilities in society. To possess disabilities does not automatically equate someone to being incompetent or incapable. The best gift a parent, an organization or society can offer them is to expose children and people with disabilities to educational advancement, skills-training and empowerment projects that will facilitate their integration into and contribution towards mainstream society. 

If you are interested in learning more about Oluwakemi or would like to get in contact with her, please reach out via her website eaglesvoice.org, her Facebook page, Eaglesvoice_ng, or email her at kemiodusanya1@gmail.com.

Rachel Affiong Umoh

Rachel Affiong Umoh, founder of The Wonder In Me (TWIM)

Rachel Affiong Umoh is a driven and ambitious young woman. She is a compere, has her own West African pidgin YouTube Channel called Psyche Special TV, which focuses on mental health wellness and special needs, and is a qualified psychologist with a passion to help the most vulnerable within her society.  Her story shows us that the dreams we have may not always evolve as we anticipated but that we need to rise to the challenge that is presented to us because oftentimes, the challenge is the key to achieving our dreams.

This is Rachel’s story … 

Prior to my birth in Kaduna State, Nigeria, my parents both emigrated separately from their respective Yoruba and Ibibio states in the South of Nigeria before meeting, marrying, and raising their three daughters, of whom I am the eldest, in the North. We grew up culturally aware of the different tribes in our families, switching easily between speaking Ibibio in Akwalbom State and Yoruba in Ogun State, when visiting our extended families. Being born into an intertribal family has been, and still is, both a source of pride and honour for me but it has also made me attuned to and impacted by the tribalism that is rife in Nigeria.

As a minority tribe in the community where I grew up in, certain access and privileges were denied not just to my family but also to certain other tribes. We were deprived of free mosquito nets and COVID-19 pandemic palliatives, denied applying for vocational training programmes and poverty alleviation incentives, such as agricultural loans and business grants, that were provided for by the government, but which were locally administered. Through the local management of such programmes, we were never timeously informed or even allowed to participate in such incentives. Recurring stigmatization and discrimination, both historically and presently, of tribes over the hierarchical access to privileges, at grassroots level, often causes rising tensions which leads to communal and tribal clashes and inter-religious conflicts in both Northern and other parts of Nigeria.

Growing up and witnessing such forms of oppression, injustices, and corruption within my region and across Nigeria and having seen, first-hand, the adverse effects it often has on the most vulnerable groups within our society, moulded my perception of the unfairness of the World surrounding me. It motivated me to want to become a lawyer and solicit for the rights of the vulnerable and the violated, to be able to provide them with the adequate support to live independent and self-fulfilling lives

As a top achiever and having been elected as the president of the press club and debate club at secondary school, I applied to study law at my chosen university in the hopes of fulfilling my childhood dream. However, despite my excellent academic record, I was denied admission because my parents did not hold high-powered positions in the country. My mother is a teacher, by profession, and a serial entrepreneur, while my father is a civil servant, but they were not connected to the crème da la crème of society, and this affected my prospects of becoming a lawyer. It felt like a gross injustice but an accepting reality and with this in mind, I proceeded to change university and course with the aim of studying mass communication because I felt that I can still advocate for the rights of the most vulnerable but using a different tactic, mass media.

However, while I was accepted to study at the next chosen university and passed the qualifying exam to be admitted into the mass communication programme, when I received notification of acceptance, I discovered that instead of being admitted into the chosen programme, I was assigned to study psycho-social rehabilitation. While this may sound confusing to others, this is the norm across Nigerian society; you may apply for one course but might end up getting admitted to another course (that you never even chose as a second option!) but we take this either with a sense of humour or a pinch of salt.

Hence, my parents encouraged me to accept studying psycho-social rehabilitation, which would certify me as a psychologist, as God’s Will for my life and with this in mind, I made the intention to commit myself to this course chosen for me although I was, at the time, not happy with the choice as psychology was all new to me. However, I was pleasantly surprised because as I learnt more about psychology in the first few weeks after the commencement of the programme, I realized the level of impact I can leave in my wake with the exposure, skills and training I would receive during my studies. It made me realize that my childhood dream of advocating for women, displaced persons and the special-needs can still come to fruition through the tools of psycho-social rehabilitation. I took to learning with zest and learnt as much as I possibly could on rehabilitation, social violation cases, HIV testing and counselling and volunteered at relevant non-governmental organizations including a 6-month working stint at Kaduna State Rehabilitation Centre and a one-year compulsory internship at the Department of Social Welfare at a general hospital in Kaduna State. The theoretical and practical exposure has been tremendous, and I eventually qualified as a psychologist in 2020.  

It was during my final year of studies that I reached out to individuals within the rehabilitation and counselling sector to form a team and established a non-governmental organization, The Wonders In Me (TWIM). TWIM is a state-registered advocacy organization driven by the mission of a “Better Me For Better Society” and the belief that mental health wellness and inclusiveness is integral to a well-balanced and functioning society. While we advocate against the stigmatization and discrimination of persons with special needs, we have also ensured that 50% of our organization’s executive members and 50% of our volunteers constitutes persons with special needs. Thus, with the current 20 executive members, on board, and 100 volunteers, half of this number represents persons with special needs.

We advocate in communities, at schools, rehabilitation centres, internally displaced (IDP) camps, prisons, and other relevant organizations. The organization’s activities includes both social media campaigns and event hosting. For the past two years, we have launched mental health clubs in 20 secondary schools across Kaduna State, provided relief support to IDP camps, orphanages and rehabilitation centres and donated wheelchairs, crutches and braces, special education training materials and other rehabilitation aids to rehabilitation centres and special education schools. We also organize training programmes for staff on the proper use of modern-day rehabilitation services for children with sensory impairments and learning difficulties and host outreach awareness programmes, which includes guest speakers and key stakeholders. The long-term vision and current challenge are to get TWIM nationally registered and to establish our offices so that we can offer counselling and rehabilitation services to more individuals and expand on the current work that we do.

I am often asked what triggered my interest in advocating for special-needs as I am not a special-needs individual, but the truth is I am part of a minority tribe within my community, and this has deepened my insights into their sense and reality of not being included and having access to an active society. Thus, I would never want any special-needs individual to ever feel like they do not belong or cannot participate. Furthermore, the beauty of having grown up in an intertribal family is that it has granted me the understanding into different worlds that may, in other instances, view each with disdain or hostility and the truth is the spheres within which special-needs and able-bodied individuals navigate tend to be two different worlds. It is important to realize that irrespective of our tribal and religious affiliations, our nationalities, our abilities, or limitations, we are all the same. We are all human and it is important that we represent or provide the vulnerable and the violated with opportunities and platforms to be represented not because of their weaknesses but because they are capable, strong, and willing to participate in society that sadly, often, forgets them. It is important that we reach within ourselves and find our humanity and work together towards a world that can represent all of us and not one at the expense of another.  It is this passion that drives me, despite all my personal and professional challenges, and no matter the hurdles, my story is proof to every African woman that giving up on your dreams is not an option. Keep on striving for your dreams and utilize every opportunity that presents itself to you because all the small steps you take in your journey will lead to greater strides.

If you are interested in learning more about Rachel or would like to get in contact with her, please reach out via her Facebook page, TWIM “The Wonder In Me”, or email her at rachelumoh3@gmail.com or thewonderinme262@gmail.com